123ArticleOnline Logo
Welcome to 123ArticleOnline.com!
ALL >> Art >> View Article

Parents Share Daily Challenges And Joys Of Caring For Child With Hirschsprung Disease

Profile Picture
By Author: 1888pressrelease
Total Articles: 362
Comment this article
Facebook ShareTwitter ShareGoogle+ ShareTwitter Share

1888PressRelease - My Little Brother Has Hirschsprung Disease Tailored Specifically to the Needs of the Hirschsprung Community.

CONCORD, Mass. - Hirschsprung disease (HD) affects approximately one in 5,000 births, accounting for over 850 new cases every year in the US alone. Yet, the information and resources available to help the parents and families who take care of children with HD are written by medical professionals and are mostly focused on a medical audience. Husband and wife Eric and Isabelle Schnadig, whose son Adrien was born 14 years ago with HD, wrote the first children’s book to address the subject. My Little Brother Has Hirschsprung Disease is an easy-to-understand overview for families and children.

HD, named after Harald Hirschsprung, a 19th century Danish pathologist who first described the condition, is caused by the absence of ganglion cells in the colon, which results in the inability to poop normally. When left untreated, HD causes belly distension, constipation and enterocolitis, leading to life-threatening illness. Yet, when diagnosed early and correctly, kids born with HD develop and do ...
... well.

Told from the perspective of Peter, older brother to Henry who has HD, My Little Brother Has Hirschsprung Disease presents the disease in an easy to approach manner including discussions of diagnosis, surgical and other treatments, challenges of living with the disease and long-term outlook. Written for extended families, patients and care givers of all ages, the clinical nature of the information is easy to understand and supported by illustrations by Isabelle Schnadig.

“Managing HD is no small matter, and every day is filled with challenges, achievements, pains and joys” said the Schnadigs. “We hope My Little Brother Has Hirschsprung Disease will help families know what to expect with the disease. We also want them to know that given appropriate medical care, their children will live full and rich lives.”

My Little Brother Has Hirschsprung Disease can be purchased online through SDP Publishing, Amazon, Barnes and Noble and other retailers.

ABOUT THE AUTHORS— Eric and Isabelle Schnadig are a husband and wife book-writing and illustrating team. They are also the proud parents of four wonderful children: Claire, Paul, Nathalie, and Adrien, and are co-founders of REACH, a not-for-profit dedicated to research, education, and awareness for patients and families with Hirschsprung disease. They work and live in Concord, Massachusetts.

ABOUT REACH —
REACH stands for Research, Education, and Awareness for Children with Hirschsprung Disease. It is a not-for-profit organization founded in 2011 by parents and physicians committed to improving the lives of children and families with Hirschsprung disease. If you would like to learn more or help, email reachirschsprungs ( @ ) gmail dot com,
visit http://www.reachhd.org and follow the organization on Facebook at http://www.facebook.com/reachhd and Instagram at www.instagram.com/reach_hd.

Total Views: 604Word Count: 444See All articles From Author

Add Comment

Art Articles

1. Exploring Possibilities That An Online Archive Holds For An Artist
Author: Harry Reinhold

2. Unleash Creativity At Opera Music & Arts Centre
Author: sharjah

3. Explore Ballet, Piano & Western Music Classes In Sharjah At Opera Music & Arts Centre
Author: sharjah

4. Opera And Music Classes In Sharjah At Opera Music & Arts Centre
Author: sharjah

5. Top-rated Music And Ballet Classes In Sharjah At Opera Music & Arts Centre
Author: sharjah

6. Timeless Beauty On Canvas: A Guide To Raja Ravi Varma Paintings
Author: Artociti

7. The Sober.buzz Community Is Rapidly Expanding Globally Across International Borders And Cultures
Author: Josh Case

8. Top Whistler Tourist Attractions For Culture And Adventure Seekers
Author: Mya Natasia

9. Explore The Artistic Vision Of A Whistler Contemporary Gallery
Author: Mya Natasia

10. Mastering The Art Of Realism Tattoos: San Antonio’s Hyper Inkers Sets The Standard
Author: Hyper Inkers Tattoo Studio

11. What Is A Triptych Painting And Its Significance?
Author: Hannah

12. What Is The Format For Triptych Artwork Creation?
Author: Hannah

13. What Is Triptych Art Prints And How It Works?
Author: Hannah

14. What Is Triptych Photography In Art?
Author: Hannah

15. Capturing Souls In Ink: Portrait Tattoo Artistry In San Antonio
Author: Hyper Inkers Tattoo Studio

Login To Account
Login Email:
Password:
Forgot Password?
New User?
Sign Up Newsletter
Email Address: